Saturday, October 7, 2017

Mr. P update - The home Addition:
Well Mr. P is moving about pretty well, its kind of bizarre that some moments seem so normal and other moments when we are talking he looks at me like I have grown two heads.
I am grateful God has gotten us both this far and so thankful for everyone's prayers.
I believe this is the reason above all that he is still here.
Not sure if it was the stay in hospital but he dozes off during the day and farts around on his laptop most of the night.
Visitors are ok just gimme me a heads up before you show up and don't be alarmed if he dozes off during your visit.

Monday, October 2, 2017

Mr. P is home

Mr. P is home and resting peacefully in my care....
Asking all to please check in with me before stopping by. He tires easily...
Thank you, Love and kisses from us both

Sunday, October 1, 2017

Mr P Update

Mr P. Update: Saw Mr P Saturday night he has good days and bad ones and this one he was a little agitated and not listening.
I have some concerns so I called a meeting with doctor and social worker lets see how that transpires. hasn't helped my mood much either....
I crashing out early tonight.
Sorry for the sour grapes....

Friday, September 29, 2017

So got a call this morning from worker and found out that they are only planning on having him in rehab for 5 days. The 5 days they wanted me to pay for up front. Screw that crap!

He walked 6 steps today, can stand up on his own and tomorrow I'm going to be there for his physical therapy.
Told them I'm not going to bring him home until he can master at least 20 steps. I will be bringing him home Monday if he can do this...

 The 1500 that rehab wanted to ream me out of will be used for his medical equipment as they have given me nothing but the run around at Kaiser from day one, with that being said i'm looking for the following: 

I had all this stuff last April and donated most of it and threw out what I couldn't donate. 

I already scored a walker for him but I need the wheel chair as back up. 

several people have asked me to re-post Pete's go fund me link:

Click this if you wish to donate: 


Thursday, September 28, 2017

Not really much to report....
Went to Kaiser Monday and went to Mr. P's room only to find a stranger in it.
Zero communication from anyone there unless its the case worker.
Since he has gotten there I've only had one doctor call me.
They are ready to move him to a rehab facility but I'm being told that his copay needs to be paid in advance to the tune of $1500.00
Went to visit last night and was told he had a rough night the night before so when I got there he was sleeping like a baby and I didn't want to disturb him. Kissed him on the cheek and let him get some much needed rest.
One doctor I did speak to Monday told me that he would probably not fully recover.
{I was extremely upset}
After spending 10 mins with the both of us in his room I walked out and he looked at me and said I'm so sorry for speaking out of turn and that he is 100 times more animated when it was me talking to him and that he now thinks a full recovery may be possible with some good rehab.
That's my next dragon to slay......
I have had several nightmare experiences this so called skilled nursing facilities with my mom and if I'm going to have to pay 1500 in advance he will be going to one with more then 2.5 out of 5 stars. I've printed a list and I don't care how far I have to drive to get there, He will be getting the best care or I will be one pissed off pixie!
I also wanted to take the time to give our sincere Thank You to all who have donated to his go fund me or even those that have just sat there and listened to me whine/given hugs/visits/words of encouragement etc. Navigating this alone is the second hardest thing I've ever had to do..
I love you all 

Sunday, September 24, 2017

Saturday Night Update

Saturday Night Update: wow I'm flabbergasted.. seems some connections are coming back but he seems at a loss for what words hes looking for so it takes a few mins.
I asked him tonight if he remembered his brother Joe and his answer was why would I forget 
who my brother 
Then I started talking about his job and he said Katherine aka katey was going to be upset that the complex was a mess. I told him all the guys Juan, Jose & Lido have it handled while you are gone and he corrected me and said his name was Lino {I always get it wrong and he corrects me} as he did tonight. 
Only 17 days out and he is making some major connections. 
This makes me very happy that he is going to make a good recovery with maybe some short term memory loss but it is still to soon to tell. 
He also was talking about the cartoons he got to watch today. 
The celebration of life event I had this morning went off without a hitch and all parties were happy and that makes me happy, I got in a quick nap this afternoon and went to visit my man this evening and left with a smile on my mug. 
Seems the computer nerd part of his brain is working as well because the pointed to the back of the monitor in his room that has an extra cable and said how could they tell when the monitor is unplugged.
I told him it was an extra cord and he quit obsessing over it. 
He is restless and I could tell he wants to get out of bed and get moving. 
Will talk to doctor hopefully some time on Monday and find out what the plans are for rehab and keep everyone posted. 

Friday, September 22, 2017

The Pete Report Thursday/Friday Edition.
Yesterday afternoon after my visit He was moved down to DOU {Diagnostic Observation Unit} at kaiser. Also found out his co-pay for ICU was $660.00 a day.
The social worker there applied him for a program that should help with the hospital co pay portion. They have not told me outright that there is permanent brain damage but it seems that the direction in which I'm being led.
It is still to soon to tell, and i'm am trying to remain positive.
An now starts the mountain of paperwork I must complete, One day at a time is all I can do.
I spent the better part of yesterday paying bills and can honestly say that living in a constant state of fear is no fun at all. I am entitled to a pity party once in a while and it seems Friday was the day....
more to come

Tuesday, September 19, 2017

Mr. P Tuesday Report.

Mr. P is all settled into Kaiser Acute Care ICU. Sort of sucks because its twice as far away. 
This time I got my wish and he said hello to me AFTER the nurse said he wasn't speaking to anyone else. I cried tears of joy. However, at this time conversation is very child-like. 
I don't think he really understands what has happened to him. On the home front as if things aren't bad enough I just got hit with a $1,500.00 IRS tax bill. When it rains it pours they say and obviously I'm not stressed out enough...
I have plans to make him a sort of memory board with the people he loves pictures on it and we should be ready for visitors come Monday once I get the all clear from his new doctor. 
I would like to stagger them so he doesn't get overwhelmed. 
Please keep praying we have an extremely long road in front of us. 
Please also share his go fund me link:

Monday, September 18, 2017

Sunday Update

Mr. P Update: went to visit this evening and upon entering nurse told me shunt was removed.
Was also told that Kaiser thinks he is stable enough to be moved to one of their facilities.

I'm not quite sure how I feel about this so I am talking to his doctors tomorrow.

I'm also not exactly sure if he whispered Hi to me tonight or if it was just a sigh.
I'd like to think he said hello.
He is still having problems following commands and at one point a tear or two rolled down my face and his eye brows tied up in a knot like he was worried. 
I know his right eye is bugging him but it didn't look so swollen today. a bunch of "what if's" were flying around in my head today. 
Patience is not one of my best virtues but I'm working on it. one day at a time...... 
This kid needs some serious sleep so ill update more tomorrow. 
Keep those prayers coming

Saturday, September 16, 2017

Saturday Update

Saturday Update: 
Well hospital did not keep their promise. 
Arrived today and ventilator had already been removed and our Mr. P is breathing on his own...... 
Cognitive skills are on the sluggish side, Not yet speaking but looks at me when asked to and he is getting a little better at following commands. 
I was a bit bummed that he didn't look at me and smile and say hello but I guess that only happens in the movies and I have to remind myself that only a few days ago there were several hands tinkering around inside his gray matter. 
I have to be a little more grateful and count my blessings that he is still with us and its going to take time to get back to where he was before all this happened. 
Right eye looks a tad better but that is going to take time as well. 
During this critical stage they are also giving him and anti-seizure medication and monitoring brain waves as well. 
Physical and speak therapy started today. 
He is easily worn out as you can imagine and they have a very cozy looking gauze beanie on him on his noggin. 
Please keep praying for my foreverman, it's going to be a long road home.

Friday, September 15, 2017

Friday update...

Friday update... Finally spoke with surgeons yesterday, they went in with camera through the leg that same way they coiled the first anyurizm.
Everything Looks good and no additional bleeding and the fluid that was on the brain is working its way out of his system via temporary shunt, time will tell if a permanent one is needed.
They are keeping him sedated to gain strength and heal a bit.
The reason they have not removed the breathing tube is because of a little excess trauma related fluid in the lungs which they have been clearing out daily. Removing the breathing tube, well they don't want to remove until he is completely ready which I completely understand. 
Then I told him there are quite a few people that want to visit that I have been holding at bay and he stated that he should be ready for visitors about 3 days after his tube is removed as his throat is going to be rather raw. 
I also want them to shave the back of his head so he doesn't look like a Hare Krishna {he is somewhat prideful} and hes also got an issue going on with his right eye from pressure behind it from the brain which will dissipate with time. 
They are still trying to keep risk of infection down as well. 
First 2 weeks after that last surgery are critical to his healing. 
They promised to call me to be there when the tube is removed.
 I want to be the face he sees when they finally pull back the medication veil to remove it. pain meds they will keep doing until about 3 days before hes ready to go home which I'm told should be about the 7th of October. So far So good. 
Will keep Everyone updated when he is ready for visitors.

Wednesday, September 13, 2017

No update!

5 hours at hospital today and not one decent fckn update since the 6th, half a tank of gas to get back and fourth daily. I've gotten to the point where I'm so fck'd up in the head i don't know which way is up. They don't think he is ready to be pulled off the ventilator just yet and wont until he starts following nurses commands. He doesn't know where he is and if i was in his shoes I'd be afraid and pissed off too. Here is a bright idea why don't you wait until I'm there to calm him down the next time you try? Needless to say i lit up like a roman candle on the attending doctor today. It's just plain heartless to let someone stress and wonder WTF is going on? I spent the morning paying our bills and was in tears by the time i was done. I'm on unemployment and looking for work and my rock, my love, my forever man is on life support. I'm Scared, Stressed, physically and mentally exhausted.... God Help us!


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